end of life care
Date: 27th Oct 2016
Carers who have looked after people in the final hours of their lives are being invited to take part in research with Buckinghamshire New University and South Bucks Hospice.
The study is investigating ways to improve support for those looking after terminally ill people at home with the aims of preventing unnecessary hospital admissions which may go against the wishes of many dying people and to provide carers with the necessary skills and knowledge to care for a person at the end of their life at home.
Research Associates Charlotte Hopkins and Geraldine Moore are leading on the research for Bucks New University. Charlotte said: "The aim of this research is to enable South Bucks Hospice to find out the reasons behind hospital admissions at the end of life so that they can provide support services and information which will facilitate people to die at home and not in hospital.
"We are asking bereaved carers and bereavement groups to get in contact to talk about their experiences in providing end of life care and the use of emergency services.
"Whether the bereavement was a few years ago or more recently, all research input is of value to us."
Snow Knoester, Manager of Professional Services and New Build Project at South Bucks Hospice, said the research project project could have a huge impact on end of life care.
She said: "Our experience with our patients supports the view that most would prefer to die at home in familiar surroundings. Any research that helps families to achieve this is welcome."
The research team will be collecting data for the study through a survey and one-to-one interviews. If you have experience looking after someone at the end of their life and would like to participate in this research, you can visit our research pages to fill in a survey or find out more about the project.
Picture caption: (L-R) Geraldine Moore, Research Associate; Charlotte Hopkins, Research Associate; Michael Bowker, Trustee, South Bucks Hospice; Professor Susan Procter, Head of Research in the Faculty of Society & Health; Lisa Ooi, Senior Lecturer; Kathryn Smales, Principal Lecturer.